Development of the biobank and networks

Promoting scientific collaboration in the domain of intellectual deficiencies of genetic origin

The Jérôme Lejeune Institute is the principal partner of BioJeL. Close links between clinical consultations at the Institute and the Biological Resource Center BioJeL are a major asset. BioJeL promotes the establishment of appropriate processes, with the goal of respecting the rights and duties of each of the parties involved in scientific research: the scientific community, the medical team and the patients.

The Jérôme Lejeune Institute supports scientific research. It has endowed the various services involved with new computer servers and software, to improve structuring and to facilitate data interfacing. The creation of a digital virtual data warehouse bringing together, in a single database and in a structured manner, the data produced by different services will serve two ends: research and care. The objective is to make it possible to visualize and analyze data effectively, to promote national and international collaborations for scientific research in the domain of intellectual deficiencies of genetic origin. The samples stored, which are collected during consultations, are thus associated with anonymized data from the corresponding patient’s medical records (socioeconomic data, family history, results of clinical examinations, medical reports, etc.).

BioJeL is a member of Club 3CR, a professional network for bodies involved in the management of biological resource collections bringing together 115 biobanks and 6 biobank networks.